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Tulsi's story

While she was developing inside the womb, Tulsi Jeshani developed a defect that stopped her spinal cord from forming properly.

Tulsi Jeshani
Tulsi Jeshani

While she was developing inside the womb, Tulsi Jeshani developed a defect that stopped her spinal cord from forming properly. She was left with a hole in her spine and a sack of spinal fluid exposed on her back. Her mum Laxmi was told that her baby girl might be paralysed, need a tube in her brain to relieve pressure, or worse, not survive.   

Tulsi’s best chance at life was to have delicate spinal surgery by Mr Zubair Tahir at Great Ormond Street Hospital (GOSH) within hours of being born. After eight hours of surgery and two days of recovery in GOSH’s world-leading Paediatric Intensive Care Unit (PICU), Laxmi was finally able to hold her new baby girl.  

Laxmi says: “It was a difficult time, but there were fantastic nurses that took really good care of us both. Tulsi is now doing really great and she loves going to play group.  

“It's incredible what these doctors can do… It’s just fantastic. It gives families another treatment choice, which is so important. When you’re receiving so much bad news, it’s really encouraging to hear that with surgery, your baby will survive, that they’ll smile, have their own unique personality, and maybe walk.”  

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