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Ava's story

Ava Mear was born with a rare condition called Cerebro-Costo-Mandibular syndrome, which means she has no ribs in the front half of her body.

Ava Mear
Ava Mear

Ava Mear was born with a rare condition called Cerebro-Costo-Mandibular syndrome, which means she has no ribs in the front half of her body. At the age of 4, Ava was rushed to Great Ormond Street Hospital from her local hospital with suspected meningitis. She was having trouble breathing and went on to suffer 4 cardiac arrests. 

When Ava arrived at the Paediatric Intensive Care Unit at GOSH she was placed on extra-corporeal membrane oxygenation (ECMO) - a replacement heart and lung bypass machine that would help clean her blood and allow her other organs to rest. GOSH consultants diagnosed Ava with a Strep A infection that had got into her bloodstream and had started to shut down her organs, including her heart.

Ava was on ECMO for 12 days before being moved out of ICU to CICU and then Bear Ward, a cardiology inpatient ward at GOSH. Ava had to learn to walk again through physiotherapy and with help from the play specialist team, she learnt to talk again. 

Clive, Ava's dad said "We were filled with uncertainty, shock, and yet hope. We felt in safe hands knowing the reputation of GOSH."

Now Ava is an active 9 year old who loves swimming and wants to be a hairdresser when she grows up.

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